Rett Syndrome Families Support and Solidarity Association • RETT Turkiye
Rett Türkiye, formally established in September 2023, aims to ensure that families have access to the essential reference materials they may need from the moment of diagnosis. In addition, by collaborating with international organizations focused on care and treatment, the association works to make all best practices accessible within our country.
Rett syndrome is a unique postnatal neurological disorder caused by mutations in a gene called MECP2 located on the X chromosome. It can be diagnosed in infancy and occurs almost exclusively in girls. It is seen in boys only in very rare cases.
Rett syndrome is a genetic condition for which promising, cure-oriented research is actively underway. You can explore ongoing studies aimed at definitive treatment.
You can contact our association to connect with other families affected by Rett syndrome and learn from their experiences. We will guide you and help you get in touch with the families closest to you.
0 532 487 5035
