Resource Library

Handbooks

• Rett Syndrome Handbook
• Rett Syndrome Communication Guideline
• Rett Syndrome Comprehensive Care Guideline
• Rett Syndrome Summary Care Guideline

Event Booklets

• RSE NSR Event Summary Booklet (17–18 March 2023)

Fact Sheets

• Nutrition & Hydration
• Screaming Episodes
• Emotional & Behavioral Difficulties and Depression
• Sensory Integration for Hand Use
• Epilepsy
• Adolescence
• Hydrotherapy
• Hippotherapy
• Physical Therapy
• Physiotherapy
• Gastrointestinal Disorders
• Genetic Profile

• Constipation
• Bone Health
• Music Therapy
• Rett Percentile Charts (0–36 Months)
• Rett Percentile Charts (2–20 Years)
• Drooling Management
• Scoliosis
• Breathing Difficulties
• Stereotypic Movements
• Treatment Approaches
• Sleeping Problems
• Poor Growth